[Corpora-List] seeking corpora of medical records

[chris brew]

There's a corpus of anonymised records to do withradiology freely available
at
http://www.computationalmedicine.org/catalog/index.php

This is primarily due to the work of John Pestian and colleagues
in Cincinnati. John did much of the hard work on clearing the anonymization
through the Institutional Review Board.

We (John and collaborators from Colorado, Poland and Ohio State) used it as
the basis for a shared task at BioNLP 07.

The idea is that it should be a resource for ongoing research. I'm
hopeful it will also lead to other people being able to publish similar
things for research use.

Chris


On 20/09/2007, Angus Roberts <a.roberts at dcs.shef.ac.uk> wrote:
>
> Hello John
>
> Your colleague might have heard of the CLEF corpus of medical records,
> it is mentioned in a couple of papers [e.g. 1]. CLEF is a UK Medical
> Research Council project [2, 3]. The corpus consists of the medical
> records of deceased patients from a UK cancer hospital. The corpus was
> established under an ethics committee approval. The fact that the
> records are from deceased patient made it easier to get the ethics
> committee approval. However, the  approval does not allow the corpus to
> be used outside of the CLEF project consortium.
>
> There has been some discussion about how the corpus might be made
> available to others, in some controlled fashion, once the CLEF project
> ends. This would, however, require further ethics committee discussions
> and approval, and is likely to take some time.
>
> If you hear of other such corpora, I would be most interested to know of
> them. As you say, such corpora are very hard to come by.
>
> thanks
> Angus
>
> [1] The CLEF Corpus: Semantic Annotation of Clinical Text. Angus
> Roberts, Robert Gaizauskas, Mark Hepple et al. Proceedings of the 2007
> American Medical Informatics Association Annual Symposium (AMIA 2007).
> To appear. (let me know if you want a copy)
>
> [2] http://www.clinical-escience.org/
>
> [3] http://www.clef-user.com/
>
>
> John Aberdeen wrote:
> > Greetings,
> >
> > I'm seeking English-language text corpora of medical records.
> > Typically medical records are unavailable to researchers due to
> > privacy laws. However, medical records of deceased individuals are
> > sometimes available without restriction. One of my colleagues
> > believes she has heard of a corpus originating in the UK consisting
> > of the medical records of deceased persons, but does not know the
> > details. Does anyone know about this corpus, or similar corpora of
> > medical records that are available for research purposes?
> >
> > Thanks,
> > John
> >
> >
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>
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