[Corpora-List] Corpora of patient and clinician narratives

[Ted Pedersen]

PatientsLikeMe collaborates with researchers (both academic and
otherwise). Their policies and how to get in touch with them are
explained here :

http://patientslikeme_research.s3.amazonaws.com/Research%20Policy%20May2009.pdf

You can also see some of the research derived from their data here :

http://partners.patientslikeme.com/about/wicks/

Enjoy,
Ted


On Mon, Mar 25, 2013 at 3:18 AM, Phil Gooch <philgooch at gmail.com> wrote:
> Hi Pinar
>
> Thanks for the link to Patients Like Me. It looks as if you need to register
> to view the discussion forums. I imagine there would be ethical issues to
> text mining such discussions from the forum without the consent of the forum
> members. It may well be a useful resource though.
>
> Cheers
>
> Phil
>
>
> On Sun, Mar 24, 2013 at 4:11 AM, pinar ozden <piniozden at hotmail.com> wrote:
>>
>> Hi Phil,
>>
>> I don't know if PatientsLikeMe could be useful for you:
>> https://www.patientslikeme.com/#
>> It is a Web portal that allows patients to discuss/collaborate on their
>> common diseases symptoms etc.
>> You would still need to process it to make a corpus out of it (scraping
>> the pages etc.), but as a result of your efforts you may acquire the
>> conversational type of text that you require.
>>
>> Please don't hesitate to contact me if you want to talk more on this,
>> preferably here: pinarwennerberg at gmail.com
>>
>>
>>
>> ________________________________
>> From: jannebj at iln.uio.no
>> Date: Thu, 21 Mar 2013 18:35:25 +0000
>> To: philgooch at gmail.com
>> CC: corpora at uib.no; j.b.johannessen at iln.uio.no
>> Subject: Re: [Corpora-List] Corpora of patient and clinician narratives
>>
>>
>> We're in the final round of ethical quality control now. I'll let you
>> know!
>> Janne
>>
>>
>> 2013/3/21 Phil Gooch <philgooch at gmail.com>
>>
>> Hi Janne
>>
>> Thanks - any corpora in any European language would be interesting for me
>> at this point, I may be able to get it translated, or use existing NLP tools
>> if available for that language.
>>
>> Best regards
>>
>> Phil
>>
>>
>> On Thu, Mar 21, 2013 at 11:40 AM, Janne Bondi Johannessen
>> <jannebj at iln.uio.no> wrote:
>>
>> Phil, the Norwegian doctor-patient corpus is in the Norwegian language,
>> which may make it less interesting for you? It will be available for
>> research purposes.
>> Janne
>>
>>
>> 2013/3/19 Phil Gooch <philgooch at gmail.com>
>>
>> Thanks Carmela and Janne for the info. Janne: is your Norwegian corpus
>> available for research purposes? If so, could you provide details of how I
>> might obtain it?
>>
>> Many thanks
>>
>> Phil
>>
>>
>> On Tue, Mar 19, 2013 at 8:58 AM, Janne Bondi Johannessen
>> <jannebj at iln.uio.no> wrote:
>>
>> Dear Phil.
>> We have a Norwegian corpus of doctor-patient conversations that is 1.5
>> million words and all the time increasing.
>> Janne
>>
>>
>> 2013/3/19 Phil Gooch <philgooch at gmail.com>
>>
>> Hi all
>>
>> Does anyone know of any publicly available corpora (annotated or
>> otherwise) of patient and/or clinician narratives? For example, reflective
>> diaries, patient/therapist dialogues, psychiatric case histories?
>>
>> I have plenty of discharge summaries and progress reports from physical
>> medicine, but these are written in a very 'medical model' and abbreviated
>> way. I'm looking more at the 'narrative medicine', person-centred angle.
>>
>> Many thanks
>>
>> Phil
>>
>> _______________________________________________
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>>
>>
>>
>> --
>> Janne Bondi Johannessen
>> Professor
>> The Text Laboratory, ILN,
>> University of Oslo
>> Tel: +47 22 85 68 14, mob.: +47 928 966 34
>>
>>
>>
>> _______________________________________________
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>>
>>
>>
>> --
>> Janne Bondi Johannessen
>> Professor
>> The Text Laboratory, ILN,
>> University of Oslo
>> Tel: +47 22 85 68 14, mob.: +47 928 966 34
>>
>>
>>
>>
>>
>> --
>> Janne Bondi Johannessen
>> Professor
>> The Text Laboratory, ILN,
>> University of Oslo
>> Tel: +47 22 85 68 14, mob.: +47 928 966 34
>>
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>
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