confidentiality

[Amy L Sheldon]

>[snip

> Level 2: Placing data on this level would open general viewing and
> listening to the public across the Internet, but would block copying.

	What mechanisms exist or can be put into place to
actually/reliably block copying? I'm told this is not doable at present in
a web archive. What sort of archive would be used to block copying?

> Level 3:  This level would restrict access to academic researchers who
> had signed a non-disclosure form.  This form would set tight standards
> regarding avoidance of use of personal names when required.  It would
> allow some temporary copying or downloading of the data for local
> analysis, but would require that downloaded files be deleted after a
> specific period and never further copied or distributed.

	Enforcable?

[snip]
> Level 6:  This level would only allow viewing and listening in
> controlled conditions under the direct on-line supervision of the
> particular researcher.

	what is "online supervision" when it's at a distance?

> Level 7:  This level would only allow viewing and listening in
> controlled conditions under the direct, in person, supervision of the
> particular researcher.
> Level 8:  These data would not be viewable, but would be
> archived in the format of the general system for use by the original
> investigator only.
>
	Is this soley as a courtesy to the donator of the data?

> I wonder if this level system would not only work to maintain
> confidentiality, but also to support the "legitimate interests of the
> original data collector."
>
	How to address the following:
	A problem arises with video (or audio) taped data that was
collected before the web was invented, and has a basic consent form
attached to it which doesn't envision making images or voice recordings
widely available. The consent form usually does not raise this as a
possibility (nor might it deny the possibility). So, since the range of
use was thought to be narrow (print), how to extend the range of use of
such material, i.e. making either the research tapes available to others,
or even inserting electronic snippets in an online publication, without
violating the agreement given in the consent form?.


Other fora to involve in this discussion might be journal editors and
editorial boards, and research officers in granting programs..

Amy Sheldon